Tiny Handprints - http://www.tinyhandprints.org/
A Place to Remember -http://www.aplacetoremember.com/aptrfront.html
APA Healthy Child Care America - http://www.healthychildcare.org/sids.html
APA SIDS Policy Statement - http://www.cjsids.com/art/AAP_policy_statement.pdf 2005
CDC - http://www.cdc.gov/SIDS/
Center for Loss in Multiple Birth (CLIMB)- http://www.climb-support.org/
Centering Corporation – http://www.centeringcorp.com/catalog/index.php
Compassion Books – http://www.compassionbooks.com/store/index.php?act=viewProd&productId=357
Cribs for kids - http://cribsforkids.org/
Empty Cradle, Broken Heart - http://www.amazon.com/Empty-Cradle-Broken-Heart-Surviving/dp/1555913024/ref=sr_1_1?ie=UTF8&s=books&qid=1222349289&sr=8-1
First Candle – Bedtime Basics – http://www.firstcandle.org/bedtimebasics/
First Candle – SIDS Alliance - http://www.sidsalliance.org/
First Candle – Resource materials - http://www.sidsalliance.org/health/health_human.html
Home Safety Council - http://www.breastfeeding.com/baby_toddler/safety.html
HUGS - http://health.state.tn.us/MCH/hugs.htm
Infant Sleep Location: Associated Maternal and Infant Characteristics with Sudden Infant Death Syndrome Prevention Recommendations – http://download.journals.elsevierhealth.com/pdfs/journals/0022-3476/PIIS0022347608003855.pdf
Lisa West Story - http://www.ireport.com/docs/DOC-174823
National Center for Education in Maternal and Child Health, Georgetown University - Resource Center Web site http://www.sidscenter.org/multimedia.html
National Center for Education in Maternal and Child Health, Georgetown University Multimedia Resources Online - http://www.sidscenter.org/multimedia.html
NICHD – Free Back to Sleep campaign brochures and training information http://www.nichd.nih.gov/publications/pubskey.cfm?from=sids
MTSU Support Services -http://www.mtsu.edu/learn/sids/support.shtml
SIDS resources in Spanish - http://www.sidscenter.org/Espanol/index.html
SIDS Training – California – great resources
http://www.californiasids.com/Training/Universal/MainPage.cfm?P=21
Surviving Miscarriage From A Christian Perspective - www.lulu.com www.smallestwingsofhope.faithweb.com
The CJ Foundation for SIDS – http://www.cjsids.com/
The SIDS Survival Guide – http://www.amazon.com/SIDS-Survival-Guide-Information-Professionals/dp/0964121883
When a Baby Dies: A Handbook for Healing and Helping - http://www.amazon.com/When-Baby-Dies-Handbook-Healing/dp/0960709843/ref=sr_1_5?ie=UTF8&s=books&qid=1223319148&sr=1-5
Vanderbilt Children's Hospital Safety Store http://www.vanderbiltchildrens.com/interior.php?mid=5195
Zero to Three - Baby Matters: A Gateway to State Policies and Initiatives! Baby Matters is a searchable database that contains resource information on state policies and initiatives that impact infants, toddlers and their families. http://policy.db.zerotothree.org/policyp/home.aspx
http://www.cnn.com/2008/HEALTH/family/09/12/sids.infants/index.html
Although anonymous, the original writer of this was a woman.
When my child has died, please...
Don’t ignore me because you are uncomfortable with the subject of death. It makes me wonder if what happened means nothing to you.
Acknowledge my pain, even if you think it shouldn’t be as great as it is... (because I’ve ‘only’ lost a baby or one of four!)
Losing a child is one of the most difficult experiences to face and the depth of my grief will shock even me as kit returns in waves. A tremendous number of emotional and physical hurts will come my way – please don’t minimise them.
Please be aware that holidays and anniversaries will be particularly difficult times.
If you invite me for lunch (or bring a meal around (and please do) in the midst of my grief, please expect to talk about my loss. It’s all I’m thinking about and I need to talk it out; small talk neither interests nor helps just now.
Please don’t change the subject if I start to cry. Tears and talking about it are the healthiest way for me to release my intense emotions.
Telling me that So-an-so’s situation must have been much worse won’t make mine easier. It only makes me feel you don’t understand or can’t acknowledge the extent of my pain.
Don’t expect that because my child is in heaven or ‘with God’ I shouldn’t be hurting. Even the most fervent believer in God would rather have their child with them. My arms ache to hold my child and I miss him or her so much. And God might not be finding favour with me right now.
Now is not the time to tell me about your own childbirth or child’s experiences... It reminds me in the most painful way of what I’m missing.
Don’t remind me that I’m so lucky to have other children. I am and I know it. But my pain is excruciating for this child; the others don’t take that pain away. Indeed, they can add to it because I’ve got to comfort them as well.
No matter how bad I look, please don’t say “You look terrible”. I feel like a total failure right now and I don’t need to hear that I look awful too.
Don’t devalue my experience or my child – the feelings of deprivation are so intense. A child who has never breathed is nonetheless missed so if I’ve ‘only’ miscarried or my child was stillborn don’t forget he was a very special, unique person.
Please don’t suggest my child can be replaced by my having more. Would you say “Don’t worry, there are plenty more fish in the sea,” to someone who had just lost their husband?
When you ask my husband how I’m doing – please don’t forget to ask him how he’s doing too. He has also lost his child. If you ignore his hurt it suggests that his pain doesn’t exist or doesn’t matter.
